Journal of Clinical Oncology, Vol 16, 2864-2867, Copyright © 1998 by American Society of Clinical Oncology
Programs for adult survivors of childhood cancer
KC Oeffinger, DA Eshelman, GE Tomlinson and GR Buchanan
University of Texas Southwestern Medical Center at Dallas, 75235-9067, USA. oeffinge@utsw.swmed.edu
PURPOSE: The potential for late effects of treatment necessitates long-
term monitoring of adult survivors of childhood cancer. The purpose of this
study was to determine how institutions follow up young adult survivors of
pediatric malignancy. Specifically, we were interested in the types of
health care providers who follow up these patients, how the follow-up is
administered, and what barriers to follow-up have been encountered.
METHODS: A 16-item questionnaire was mailed to the 219 members of the
Children's Cancer Group (CCG) and the Pediatric Oncology Group (POG). The
survey consisted of four categories of questions that asked for information
regarding the existence of a program to follow up young adults, the setting
of the program, routine activities of the program, and commonly encountered
barriers to care. RESULTS: One hundred eighty-two members returned the
survey (83% response rate). Fifty-three percent of the respondents have a
long-term follow-up clinic at their institution. Whereas 44% have a
mechanism for following up adult survivors, only 15% of the programs have
established a formal database for adults. Nearly all the programs (93%) use
a pediatric oncologist. Although an adult oncologist assists in 13% of the
programs, primary care physicians are uncommonly (8%) involved. CONCLUSION:
Few programs focus on the long-term health care needs of adult survivors of
childhood cancer. The majority of existing programs are in pediatric
institutions, without significant input from adult- oriented, generalist
health care providers.
This article has been cited by other articles:
|
|
|
|
 
S. Drew
`Having cancer changed my life, and changed my life forever': survival, illness legacy and service provision following cancer in childhood
Chronic Illness,
December 1, 2007;
3(4):
278 - 295.
[Abstract]
[PDF]
|
|
|
|
|
|
|
A. D. Villella
Curing Childhood Cancer Is Not Enough
AAP Grand Rounds,
January 1, 2007;
17(1):
1 - 2.
[Full Text]
[PDF]
|
|
|
|
|
|
|
K. C. Oeffinger and M. S. McCabe
Models for Delivering Survivorship Care
J. Clin. Oncol.,
November 10, 2006;
24(32):
5117 - 5124.
[Abstract]
[Full Text]
[PDF]
|
|
|
|
|
|
|
A. T. Meadows
Pediatric Cancer Survivorship: Research and Clinical Care
J. Clin. Oncol.,
November 10, 2006;
24(32):
5160 - 5165.
[Abstract]
[Full Text]
[PDF]
|
|
|
|
|
|
|
E. C. Duffey-Lind, E. O'Holleran, M. Healey, M. Vettese, L. Diller, and E. R. Park
Transitioning to survivorship: a pilot study.
Journal of Pediatric Oncology Nursing,
November 1, 2006;
23(6):
335 - 343.
[Abstract]
[PDF]
|
|
|
|
|
|
|
A. D. Villella and J. D. Dickerman
Long-Term Mortality Among Five-Year Survivors of Childhood Cancer
AAP Grand Rounds,
February 1, 2005;
13(2):
13 - 14.
[Full Text]
[PDF]
|
|
|
|
|
|
|
K. C. Oeffinger, A. C. Mertens, M. M. Hudson, J. G. Gurney, J. Casillas, H. Chen, J. Whitton, M. Yeazel, Y. Yasui, and L. L. Robison
Health Care of Young Adult Survivors of Childhood Cancer: A Report from the Childhood Cancer Survivor Study
Ann. Fam. Med,
January 1, 2004;
2(1):
61 - 70.
[Abstract]
[Full Text]
[PDF]
|
|
|
|
|
|
|
C. L. Schwartz
Health Status of Childhood Cancer Survivors: Cure Is More Than the Eradication of Cancer
JAMA,
September 24, 2003;
290(12):
1641 - 1643.
[Full Text]
[PDF]
|
|
|
|
|
|
|
J. G. Frohna
Childhood Cancer Survivors: Do Our Patients Know Their History?
AAP Grand Rounds,
June 1, 2002;
7(6):
61 - 62.
[Full Text]
[PDF]
|
|
|
|
|
|
|
P. C. Kolb Smith
The Role of the Primary Care Advanced Practice Nurse in Evaluating and Monitoring Childhood Cancer Survivors for a Second Malignant Neoplasm
Journal of Pediatric Oncology Nursing,
May 1, 2002;
19(3):
84 - 96.
[Abstract]
[PDF]
|
|
|
|
|
|
|
N. S. Kadan-Lottick, L. L. Robison, J. G. Gurney, J. P. Neglia, Y. Yasui, R. Hayashi, M. Hudson, M. Greenberg, and A. C. Mertens
Childhood Cancer Survivors' Knowledge About Their Past Diagnosis and Treatment: Childhood Cancer Survivor Study
JAMA,
April 10, 2002;
287(14):
1832 - 1839.
[Abstract]
[Full Text]
[PDF]
|
|
|
|
|
|
|
D. J. Vaughn and A. T. Meadows
Cancer Survivorship Research: The Best Is Yet to Come
J. Clin. Oncol.,
February 15, 2002;
20(4):
888 - 890.
[Full Text]
[PDF]
|
|
|
|
|
|
|
T. R. Moller, S. Garwicz, L. Barlow, J. F. Winther, E. Glattre, G. Olafsdottir, J. H. Olsen, R. Perfekt, A. Ritvanen, R. Sankila, et al.
Decreasing Late Mortality Among Five-Year Survivors of Cancer in Childhood and Adolescence: A Population-Based Study in the Nordic Countries
J. Clin. Oncol.,
July 1, 2001;
19(13):
3173 - 3181.
[Abstract]
[Full Text]
[PDF]
|
|
|
|
|
|
|
T. B. Haddy, R. B. Mosher, and G. H. Reaman
Osteoporosis in Survivors of Acute Lymphoblastic Leukemia
Oncologist,
June 1, 2001;
6(3):
278 - 285.
[Abstract]
[Full Text]
[PDF]
|
|
|
|
